THE MPS I REGISTRY: Committed to increasing the understanding of MPS I disease and improving the lives of those living with this rare condition

MPS I registry is a global resource dedicated to improving the understanding of MPS I disease. It is an ongoing, observational database that tracks patients’ natural history and outcomes with MPS I.

MPS I Registry collects clinical data on patients with MPS I disease worldwide to help healthcare professionals better understand MPS I disease and its management.

The registry also monitors the effect of Aldurazyme on pregnant women and their offspring. Pregnant women and women of childbearing potential should be encouraged to enroll in the MPS I patient registry. Participation is voluntary and may involve long-term follow-up.

The registry’s database helps increase the understanding of MPS I disease by:

• Providing individualized patient reports and informative clinical summaries
• Encouraging physician collaboration and shared expertise
• Facilitating important publications

In addition, physicians may publish their own data or publish analyses on aggregate Registry data.

Help to improve the quality of care for patients with MPS I disease. To learn more, please visit: www.registryNXT.com